This photo I took after I literally climbed into bed with Clara Saturday. 

We are still at UNCCH. Jason and I have been switching on and off who is up here. I stayed the night and will be here today. I am now waiting for surgeon to round to hear what the plan is today. 

Yesterday they took the NG tube out (the tube from her nose in the photo) and let her stomach drain from her gtube. Today, depending on how much drained yesterday, I think they will stop draining from gtube and see what happens. 

Then possibley give her clear liquids through her feeding tube to see how that goes. Then feedings. Although I'm not sure if that is still the same plan. 

I would guess several, a few?, more days. But there is no time line . I will ask for one this morning. 

Clara has lost weight, and looks smaller than ever to me. They had mentioned giving her a picc line with TPN if they aren't able to feed her soon. This would not be good to me, as it means we are not moving forward but still staying still. 

She doesn't sleep well, and therefore nether do I. I especially miss our night nurses. 

I worked yesterday, which was really hard but a good distraction. I didn't realize how tired I was until I stood still in my art room. 

I went back for my classes ,students,this week. I wanted to continue with their clay projects and fire them in the kiln. So much to finish before they pack it all up and take it home. 

Jason was here and there is no way I can sit still at home in an empty house even though there are a million things to do there. 

So it's almost 9 am and I am still waiting for rounds. Praying for good news. 

             Clara and MeMe on Sunday.