In this photo below she is getting her tube re taped by Heather and Maggie. Also they let me take a photo of her with out all the tape on her face. I know I am her mommy, but she is just so beautiful to me. Only one other time have I seen her with out the tape.
Possible snag in Thursday's plans with the bronchoscopy. It might be postponed for reasons I am not clear about. It will be discussed tomorrow with Pulmonary, ET and NICU doctors. Jason and I have expressed that we wont it done, and don't understand YET the value in waiting. I hope more will be revealed tomorrow.
The past several days I have found a renewed strength, and just have been extremely positive when I am with her. She is so strong and courageous. She has made it through every curve ball thrown at her. What a remarkable little baby! All of my moments with her as scary and wonderful as they have been, are such precious little blessings to me.
How blessed am I to have spent almost 80+ with my baby, that isn't even supposed to be here yet.
Praise God!


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