We are certainly ready to bring Clara home. Maddie and I were both talking about how lonely the house feels without her. I couldn't even walk into her room, night before last. There is just too much silence without her here, which is interesting considering she doesn't talk.
This photo was taken the day we told Madeline we were having a baby girl. She of coursed mentioned out loud a second later that she wanted a boy. Which is so her!!
I miss having both girls together with me. We are so blessed to live somewhat close to the hospital, it gives us a chance to be with both. However not at the same time. Maddie can't visit her in the PICU, so she is especially ready for her Clara to come home, and for us to all be together again. Soon I tell her, soon.
Clara had a good day again. She is having a hard time resting there and doesn't sleep very long. Which made for a long night for me. She just cried and wanted to be held. Which I couldn't, so there was a lot of Lullaby Radio on my Iphone and head rubs to finally get her settled. No big naps today either.
She did throw up this morning. Maybe from a cross between needing to be suctioned and just being full from the continuous feed, or from the oxycodone she was given through out the night. Anyway a mess.
With the surgery and also with the constant humidity blowing in the trach (the blue corrugated tube) leaves her airway very wet, so she needs to be suctioned a lot more than normal.
Still just on Tylenol and antibiotic. No pain meds. We did get the go ahead to start PO feeds (by mouth) today, but when I tried to let her drink she gagged and wretched. So none of that yet. I do think the stent could possibly create problems with her eating.
The highlight of her day was when our nursing agency sent her balloons. She was so happy!!
One of her day nurses came for a visit, which was awesome for me to have some help. I was able to step out, stretch my legs and get lunch. One of the most complicated things about the PICU is no bathroom. So you have to leave the unit for that, and to change, brush your teeth, etc.
Dr. Z also said Clara looked great so the trach change will now be Thursday and hopefully discharge then too. Very exciting news!!
Highlight of my day, besides seeing Clara do so well, was seeing my Maddie!!
The day we found out our baby was a girl.
Maddie's big reveal, she was going to be a sister!!
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