"Please pray for Clara and Jason and myself today as  we meet with a neurologist today in chapel hill. Please pray for Clara and Jason and myself today as  we meet with a neurologist today in chapel hill. We believe Clara is having infantile spasms (seizures). Yesterday morning being the worst. They are getting us in quickly. This could be a serious condition we will have to face and again on top of everything else this feels unbearable. Jason and I feel an enormous weight on us....Like our heart is again breaking. so we need specific prayers for the two of us today. I will send more information later."

This was the text I sent out to family earlier. We are still waiting to be seen. And hour and a half. We are still waiting. As you can see Clara is very sleepy. 

We have videos to share with the doctor. I specifically am hoping for a EEG very soon, today would be great, but not likely. Also medicine to control these jerks, spasms. 

After a very emotional day yesterday and this morning. I am okay as I wait. Jason is asleep in his chair too. But I dare not photo him :)  I am fine, surprisingly fine as I wait with all my information, questions ready. 

Our nurse Joni is with us, which is very helpful and comforting. 

If you read this today please pray specifically for the above things with me.