Clara has discovered balloons. Thank goodness we have three at home from Valentines Day.  When she can get a hold of the strings she can really get them going. But most of the time she just enjoys looking at them. 

Despite Clara having a cold and Jason working Saturday, we all just had a good weekend. She starts her full dose tomorrow, 500mg 2x a day of Sabril. The spasms are still there, but more subtle. Today I counted 4 clusters of up to 6 each time. We still have a week or so wait on the full dose to see if they will go away fully. But it is good news they are controlled a little. 

She continues to have lower tone, and not eating as well. But that could also be from the cold. 

With the upcoming threat of snow and sleet, it reminds me of a year ago like a week ago after Clara came home. It snowed and we were out of a nurse for days. I was so confident, and really just looked forward for some alone time with our baby. 

Now...well... I welcome the help, and hope that nothing comes. I appreciate and value our nurses and really would like the night time sleep:)