I certainly wasn't responsible for putting on sunscreen and keeping up when it was time to reapply. I had time to do whatever I wanted. Walks on the beach, countless swims in the ocean, sitting in a beach chair for as long as I wanted.
This time I had no grand and glorious expectations for our trip. Goal 1: no hospital trip Goal 2 Keep madeline safe and Clara not sick Goal 3 keep my sanity. One out of the three I guess isn't that bad, depending on how you look at it. Yes Clara was sick most of the trip and I almost lost my sanity! However....no hospital trips..what a blessing.
Thirty minutes out of town we forgot the cool mist, had to turn around. When we got there we realized that we forgot a charger to a piece of Clara's equipment. Fortunately that got resolved without another trip home. I guess it didn't take very long for it to get hard.
Looking back I would have done a few things differently, like bring a nurse, pack more supplies, or maybe just planned to stay half a week. But again these are just about Clara, and she is ALOT but isn't our everything.
Madeline needs her magic. She again was our normal, what got us through our week. I could not leave and pack it all up for her. As much as Jason and I wanted to surrender, she made us press on. And now when I look back it doesn't seem so bad and through her eyes it does seem magical.
I think in any circumstance, a typical new baby or a special needs kid, whatever, traveling is hard. It was important to me to have a normal experience. Yes we have our new norms, and they are fine...but I wanted a normal family of four trip. It was so important to me to give that to both our girls.
I have no regrets (well except the equipment stuff). And now weeks later, I am just so proud that we did it and have to the photos to prove it. Our FIRST vacation of four.
Clara had a trach infection the entire week. This is a photo of Jason giving her an antibiotic breathing treatment through her trach.
Maddies first fish!
My big pink hat
No comments:
Post a Comment